Find a Research Site

Magnifying glass icon

Before anyone can take part in the COMPASS PWS study, the study team will need to determine if they are eligible. They will ask questions about the potential participant’s medical history and perform a health check-up, including medical tests such as blood tests.

For more information, and to find out if your loved one may be eligible to take part, please contact a study site using details listed in the map pins below, or submit your contact information using the form below. If you use the form, your contact information will be supplied to the Study Sponsor and someone will reach out to you about the study. As you can see from the map, there are many study sites located throughout North America.

The form is limited to residents of the United States and Canada who are over the age of 18. By submitting this form, you warrant that you are a resident of the United States or Canada and that you are over the age of 18.

Birmingham, AL

University of Alabama at Birmingham Hospital
Hussein Abdul-Latif, MD
Contact:  Tushima Reeves
Phone:  205-638-9173
Email:  tfails@uabmc.edu

Phoenix, AZ

Phoenix Children’s Hospital
Dr. Oliver Oatman

Orange, CA

University of California – Irvine Medical Center
Virginia Kimonis, MD
Contact: Rosie Magallon
Phone: 949-824-8297
Email: rmagallo@hs.uci.edu

Palo Alto, CA

Lucile Packard Children’s Hospital
Diane Stafford, MD
Contact: Alondra Loyola
Phone: 925-771-9911
Email: aloyola1@stanford.edu

San Diego, CA

Rady Children’s Hospital – San Diego
Lynn Bird, MD
Contact: Sherrie Bandy, CCRC
Phone: 858-576-1700 ext. 221666
Email: sbandy@rchsd.org

Aurora, CO

Children’s Hospital Colorado
Shawn McCandless, MD
Contact: Ruth Fisseha
Phone: 720-777-2569
Email: ruth.fisseha@childrenscolorado.org

Iowa City, IA

University of Iowa Hospitals and Clinics – Stead Family Children’s Hospital
Michael Tansey, MD
Contact:  Carter Johnson
Phone:  319-335-7434
Email:  carter-johnson-1@uiowa.edu

Chicago, IL

Ann & Robert H. Lurie Children’s Hospital of Chicago
Jill Samis, MD
Contact:  Sarayu Ratnam
Phone:  312-227-6617
Email: sratnam@luriechildrens.org

Indianapolis, IN

Coming Soon

Boston, MA

Boston Children’s Hospital
Charumathi Baskaran, MD
Contact:  Nicole Doble
Phone:  617-355-6365
Email:  nicole.doble@childrens.harvard.edu

Baltimore, MD

Johns Hopkins Hospital
Contact: Ann Scheimann

Kansas City, MO

Children’s Mercy Kansas City
Emily Paprocki, MD
Contact: Krystin Quilty Sanford
Phone: 
816-460-1097
Email: 
endoclinicaltrials@cmh.edu

St Louis, MO

Active but awaiting approval to receive referrals

Brooklyn, NY

Maimonides Medical Center
Dr. Deepan Singh
Contact:  Hasan Mustafic
Phone:  718-283-8170
Email:  HMustafic@maimonidesmed.org

Columbus, OH

Active but awaiting approval to receive referrals

Pittsburgh, PA

Coming Soon

Nashville, TN

Active but awaiting approval to receive referrals

Fort Worth, TX

Cook Children’s Medical Center
Contact: Kelsey McLaughlin BSN, RN, CPN

Phone: 682-885-6837
Email: kelsey.mclaughlin@cookchildrens.org

Houston, TX

Coming Soon

San Antonio, TX

CHRISTUS Health – The Children’s Hospital of San Antonio
Elizabeth Roeder, MD
Contact: Katrina Roberts
Phone: 210-704-4755
Email: katrina.roberts@christushealth.org

Salt Lake City, UT

Coming Soon

Seattle, WA

Seattle Children’s Hospital
Parisa Salehi, MD
Contact: Stephanie Purdy
Phone: 206-987-2540
Email: stephanie.purdy@seattlechildrens.org

Edmonton, AB

No longer enrolling participants.

Montreal, QC

Enrolling participants less than 19 years old
Active but awaiting approval to receive referrals

Toronto, ON

Coming Soon